A summary of what's been going on in my life...

    Long read ahead but I’ve been transparent about my health journey so far and I feel like I still need to own my truth for my own sanity!

    A few weeks back I told you all that I had been diagnosed with gastroparesis. A rare complication from my emergency gallbladder surgery back in 2020. The care plan was medication to help me properly digest and absorb food. And it was helping!
    Almost two weeks ago I got a rare side effect from that medication called tardive dyskinesia (TD). It causes repetitive, involuntary movements.
    I was immediately taken off that medication, placed on something to reverse the effects of the TD and I had to wait until the medication was completely out of my system. (It’s working slowly but surely! Yay!)
    I went through symptoms of withdrawal for around 6 days and since I was no longer on meds, my body was no longer digesting and absorbing food properly.
    So with that being said I went 7 full days only eating around 70 calories (1 piece of bread or some applesauce) and unable to drink enough to keep me hydrated. I couldn’t keep anything down.
    That landed me in the emergency room for dehydration. I got some much needed IV fluids and was sent on my way.
    My gastroenterologist finally got me a new medication for the gastroparesis and I’ve been fighting with my insurance company and now the pharmacy on its availability for about a week.
    I finally have word that my medication will hopefully be available for me to get on Monday!
    It’s been an exhausting and trying few weeks but I’ve got a great support system and I’m working hard on getting my health back. This is a forever diagnosis so unfortunately, I’ll be dealing with stuff like this for the rest of my life. But I’m confident with my team of doctors I can find the perfect balance.






 

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